Angie is such an amazing woman. She just had a 3rd heart surgery in November and is recovering with such strength! She has a rare syndrome called Marfans Syndrome and thank God she was aware of her family history and stayed on top of things. She is incredibly positive, beautiful, and strong.
Thank you for sharing your story with the world, Angie!
- Why do you want to be a part of this project?
To share my story and increase awareness
- How have you been affected by Heart Health?
I have a genetic condition called Marfans Syndrome (1 in 5000 have it) which caused me to have an aortic dissection in 2014. I knew of my condition and my husband was able to communicate with the emergency responders when they arrived. I was diagnosed quickly and it saved my life. I had two open surgeries that year to replace portions of my aorta and a third surgery in November 2017 to replace the remainder of my aorta. Now that my entire aorta is dacron graft, I am safe from developing further aneurysms on it.
- What do you want people to know?
Awareness is key. It’s better to know what you’re up against and educate yourself about heart health, genetics, family history, etc. If I hadn’t known I had Marfans or been educated about what “could” happen, I most likely wouldn’t have survived my dissection. They often go undiagnosed and have a high mortality rate.
- How has this all changed your life?
I embrace life harder. I’m more emotional, but in a good way. If I want something I go after it, who knows if I’ll get the chance again. I hold my family and friends tighter, closer. I don’t sweat the small stuff as much. It made me realize the best laid plans can change in an instant!
- What’s the most important thing in the world to you?
My family and friends (and being alive to share experiences with them).
- If this was your last week on earth, how would you live it?
I would spend quality time with all of the important people in my life, starting out with my husband and son and by the end of the week I would be surrounded by all the rest of my loved ones, a great big party with lots of fun and laughter!
- What are you passionate about?
Supporting my family and friends. If someone needs me, I’ll be there, whether it’s a phone call, a hug, a cup of coffee or just to listen.
- What do you love about yourself?
My emotional strength and optimism.
- What is the nicest thing anyone has ever done for you?
My husband has been the most patient person on earth with me since my dissection. A wife that has had three major surgeries and suffers from chronic pain are not what he signed on for, but he loves me, support me and always cheers me on . I can’t imagine a better partner to have by my side.
Thank you so much, Angie for being a part of this and sharing your incredible story. You are such an inspiring woman and have been through so much. I’m so glad you have such a strong support system that has helped get you through it all.